The 9th Max’s Big Ride will take place from June 27 - July 1!
Max’s Big Ride is a not-for-profit organization created to fundraise, raise awareness and advocate for better outcomes for those living with Duchenne muscular dystrophy.
Max’s Big Ride is named after Duchenne muscular dystrophy patient Max Sedmihradsky. In 2015, Max and his father Andrew started riding their cargo bike 600 km between their home in Hamilton and Ottawa to draw much-needed attention to the fight against Duchenne muscular dystrophy and they’ve continued this ride every summer since.
Max’s Big Ride fundraises for the Duchenne Muscular Dystrophy Research Fund at the University of Toronto and University of Toronto Mississauga. One hundred percent of the money received goes directly to fund research being conducted by the Gunning Group Lab at UTM and PRiME Fellowships or PRiME Clinical Catalyst Fellowships offered by UofT.
FCK DMD
FCK DMD = Fundraising, Care, Knowledge - in the fight against Duchenne muscular dystrophy, the only thing missing is U! 😀
How can U help? This year we are selling FCK DMD unisex and women's t-shirts and hoodies in black and grey to help raise money for research at University of Toronto for research into better outcomes for those living with Duchenne muscular dystrophy.
$10 from the sale of each item goes directly to the fund research and by wearing one, you’ll be helping us to raise awareness about this terrible disease.
THE ONLY THING MISSING IS U!
‘Be strong’. Sometime last year, I started whispering ‘be strong’ in Max’s ear when I hugged him goodbye - but really, I think those words were for both of us. It is so hard to watch your child struggle daily against Duchenne and I’m sure things are so much harder for him - but Max rarely complains.
To him, I hope ‘be strong’ meant having the strength to ask for help if he needed it, to try as best he could to accomplish the small things others may take for granted and to have the tenacity and positive attitude needed to get through his day.
To me, ‘be strong’ is a daily reminder to push all the negative thoughts that sometimes feel like they can consume me and promise to do one small thing that day to help fight this devastating disease.
Andrew - Max’s dad
